Kids Living Gluten Free
Wheat and gluten sensitivity frequently go undiagnosed and untreated. How can parents determine if their child has it?
When I tell other parents that my 11-year-old son is living gluten free, I am inevitably met with one of three questions:
1. What does that mean?
2. Why?
3. Does he have Celiac disease?
To answer:
1. It means that none of the foods he eats contain wheat or “gluten” — a type of protein that tends to exist in wheat, barley and other carbohydrates, and which gives dough its elasticity. This includes cookies, cakes, pizza, breads, pancakes, pasta and most cereals.
2. Because we believe gluten was impacting his digestion and focus.
3. No.
Although gluten by itself is not necessarily bad for one’s health, it is estimated that from 1.5 to 4 million people in the United States have problems digesting it.
There is a difference between gluten sensitivity and Celiac disease. People who are gluten sensitive can generally eat it without any serious ill effects.
Celiac is a digestive disease that damages the small intestine and interferes with absorption of nutrients from food. When people with Celiac disease consume gluten they often feel quite ill. A blood test can usually confirm Celiac.
It was during a visit to a local homeopathic physician that the suggestion to remove gluten from my son’s diet was initially proposed. At the time he was 8-years-old.
A bumpy rash on his upper arms, some digestive concerns and difficulty maintaining focus and controlling his impulses at school, were the factors which led the doctor to make the recommendation.
Given that my son incessantly craved wheat products — a sign of gluten sensitivity — and that his diet at the time primarily consisted of pizza, pasta, toast, cereal and an undying passion for both stuffed shells and bagels, I viewed the removal of these items to be akin to slowly starving him to death.
Determining it was not worth the trouble and angst, we declined to follow through.
A year or so later when the concerns had yet to improve and when another physician also made the recommendation, we decide to give it a trial run for two months. Admittedly, some bribery was involved.
In view of the fact that those two months fell over the winter holidays – making it especially challenging – we offered a special “bonus” upon completion as incentive.
Over the course of those two months the rash did dissipate, his digestion improved and his teacher commented that he seemed more focused. It was frequently difficult, especially when his siblings and friends were eating things he could not. Nevertheless, he was quite the trooper and he even decided to extend the two months a few weeks longer because he liked how he looked and felt.
What I discovered is that there exists a world of delicious and satisfying gluten-free options.
With sauce and Parmesan cheese, gluten-free pasta can taste the same as wheat pasta, desserts and pancakes taste no different, breads can be palatable – at least the bread-mix options, and there are many fine pizza alternatives. My Place Restaurant offers an appetizing gluten free pizza.
The only item we are still in search of is a tasty gluten free bagel.
Although many parents and physicians feel there is a link between gluten sensitivity and attention and learning difficulties, the link has yet to be proved scientifically.
Newtown naturopathic physician, Dr. Shawn Carney, has had extensive experience treating both Celiac and gluten sensitivity. It is not uncommon, said Dr. Carney, for kids to consume foods to which they are sensitive without even realizing it.
Symptoms of gluten sensitivity, according to Dr. Carney, can include:
- Fatigue
- Headaches
- Joint pain
- Weight loss
- Diarrhea, soft and bulky stools in infants and other gastrointestinal problems
- Bloating
- Short stature (More common with Celiac Disease.)
Agitation within the body, said Dr. Carney, can carry over to mood, which can affect a child's ability to concentrate.
An IgG test, said Dr. Carney, can often determine the foods to which a child may be sensitive.
My son ultimately went back to wheat products once summer came. Although he did fine, this past February he declared on his own that he wanted to go wheat-free again.
His reasons: He felt it may help his soccer skills and he had noticed a re-emergence of his rash. His teacher recently mentioned that he seemed “calmer.”
Coincidence? I’m not sure. Nevertheless for the time being I think we'll stick to it.
Following are some of the gluten-free products we have found to be worthy of mention:
- Breads by Anna: The pumpkin and banana breads are wonderful and the maple pancakes are some of the best we’ve tasted. (My older son who refuses to partake in the gluten free world even admitted that these were yummy.)
- Bob’s Red Mill: The cakes and cookies are comparable to any flour based products.
- Envirokidz: The Koala Crisp has become a personal favorite of my non-gluten-free daughter. The Gorilla Munch is quite good as well.
- The Gluten Free Pantry offers a huge selection of gluten free products. Some of our favorites: Dr. Schar’s Ready Made Pizza Crust, Annie’s Rice Pasta & Cheddar, The Tinkyada Pastas and the Bakery on Main Peanut Butter Chocolate Chip Granola Bars.
Caraluzzi's and The Big Y also carry many of the above products as does Food Works in Monroe.
Once you start talking to other parents, you realize others share similar experiences.
When Newtown mom, Pam Buchler's son Jack contracted a skin disease called "moluscum" — a condition in which patches of little bumps appear on the skin — she spent a year taking him to dermatologists who administered often painful treatments.
She eventually took Jack to a naturopathic doctor who advised taking him off wheat. These skin rashes, the doctor said, usually erupt due to a weakened immune system. When a body has an aversion to something — in Jack's case, it was wheat — the body will fight that rather than the skin issue.
Pam followed the doctor's advice and within three weeks the moluscum cleared up.
Dawne Kornhaas
8:03 am on Sunday, April 3, 2011
Suzy I was in the same boat as you. My oldest son was diagnosed as having a gluten sensitivity when he was 8 and had the very same symptoms. We also were patients of a local natropathic physician. It was a very difficult transition. it made a negative emotional impact on him. It is hard to say to young child that you can't eat your favorite foods anymore and whenever he was going to a birthday party or a friends house I had to bring his own food for him. This made him feel indifferent and he came to the point he didn't want to go anywhere anymore because it was such a big deal to make sure he was eating gluten free. So I learned that instead of taking it all away at once I did it in baby steps for him. He was also allergic to dairy, eggs, spelt and nuts which made finding alternatives even more challenging since some of them contained either spelt flour or nut flour.
Eventually he decided he didn't want to be gluten free anymore but once he went back to it he realized the difference it made and then went right back to gluten free but decided that if he went anywhere he would make the decision as to what he would and would not eat. Had he been diagnosed as an infant or toddler I think it would have been easier because it would have felt more like a normal part of life for him.
All that being said it is great now that there are more option for gluten free and are tasty too and trader Joe's also carries some delicious gluten free products as well.
Dawne Kornhaas
8:16 am on Sunday, April 3, 2011
One question I just thought of how do you handle school lunch for your son? I know the gluten free breads fall apart in the lunch box. This was always a challenge for us.
Suzy DeYoung
11:12 am on Sunday, April 3, 2011
We experienced similar problems in regard to school lunch so we learned to think a little "outside the box." Rather than sandwiches we did pasta or soup in a thermos, or a container of ham and cheese, tuna or chicken salad with a side of GF crackers. Sometimes I packed chicken nuggets with a container of rice.
If your child is just gluten sensitive and does not have Celiac, spelt may be okay. My son tolerates spelt just fine and Trader Joe's has a spelt bread that does not fall apart and is quite tasty.
Newtown Mom
12:51 pm on Thursday, April 7, 2011
My daughter is Celiac and we struggled in the past as well with lunches until we found a roll that she loves. Against the Grain makes a perfect roll for sandwiches and can be bought at Food Works in Monroe. Also, a great resource for Gluten free food go to http://www.ceceliasmarketplace.com - this sites sends daily email alerts targeting Gluten free foods. Very helpful!
Tamara Doherty
9:37 am on Sunday, April 3, 2011
Just wanted to mention that Wishing Well in Sandy Hook has a wide selection of interesting gluten free snacks that aren't typically available in grocery stores.
Kim Rio
10:48 am on Sunday, April 3, 2011
Suzy,
"Udi's" has a tasty gluten free bagel.
Dawne Kornhaas
1:25 pm on Sunday, April 3, 2011
Thank you Suzy. One more mention would be to be aware of gluren hidden in foods such As chicken broth, deli meats (used as a filler) and candy.
Patricia Grace-Farfaglia
7:56 am on Monday, April 4, 2011
Let me recommend Gillian's Foods products at http://www.gilliansfoods.com/ and ShopRite in Southbury. They have a good frozen pizza dough that you roll out. I find that frozen GF pie shells are dry. Gluten sensitivity can erupt at any age - for me it was at age 50. I am a Registered Dietitian and knew about the GF diet, but it is still overwhelming when you have to change your eating lifestyle. I also have Multiple Sclerosis and those symptoms improved with a GF diet. I get my bread from friends of the family at www.nicksdeliandpizza.com. They are from Naples and have a GF bread factory in Rochester, NY. My neighbor in Sandy Hook has a line of GF baked goods: Gilbert's Goodies. It is slowly getting easier to eat gluten-free.
Susan McGuinness Getzinger
1:12 pm on Thursday, April 7, 2011
"Enjoy Life" brand has cereal, cookies and chocolate! Shoprite and Whole foods carries them. Trader Joes has great rice cakes that Don't have wheat, unlike other brands. Trader joes also has a great sunflower butter, for those avoiding peanuts, as well. It tastes like a mild peanut butter and with a dash of seasalt it Really tastes like peanut butter!!! "Food for Life" has frozen rice bread at both stop n shop n shoprite.
Sonya Mills Greenawalt
5:26 pm on Wednesday, April 27, 2011
Just wanted to say thanks for this article. My 10 year old has dealt with the same issues (bumps on her arms, digestion & attention) in addition to frequent headaches for several years and it seemed as though it was just a frustrating fact of life for her. I gave her a summary of the article and she said she'd like to try going gluten free.
The first week or so she had a few slip-ups and it was amazing how quickly she noticed the effect on her body: stomachaches, flushed and sweaty, headaches, etc. Drinking several glasses of water as soon as she noticed helped... She swears she's never eating gluten again.
I'm so grateful for the wealth of products & recipes out there today! Udi's bread, Annie's mac & cheese, Amy's frozen pizza and KIND bars are all nice convenience foods for her to have on hand. She proudly made two batches of cupcakes from scratch for Easter and everyone who tried them was surprised at how tasty they were. As a confident baker and budding chef, she's preparing her own gluten free cookbook already.
Hoa Nguyen
6:26 pm on Wednesday, April 27, 2011
Wow, what a great story! Thanks for sharing it with us!
Sonya Mills Greenawalt
10:36 am on Tuesday, May 17, 2011
FYI - Caraluzzi's is going to start carrying the Udi's bread. According to their customer service it should be on the shelves in about 10 days. They'll be looking for the hot dog and hamburger rolls from Udi's as well. (Fantastic customer service!)
Patricia Grace-Farfaglia
9:09 am on Friday, May 20, 2011
Need a pocket guide for shopping and restaurant tips? "The New Ultimate Guide to Gluten-Free Living" is published by the Celiac Disease Center at Columbia University. www.celiacdisesecenter.org